Pandemic restricting access to services for children with complex medical issues: UBC study

Parents of children with complex medical reduced their access to hospitals and schools

Black Press Media file photo

Black Press Media file photo

Families with children who have extremely complex or chronic medical conditions are struggling to find adequate support, according to the latest research by the UBC.

Children with chronic medical conditions have lost access to key services like physiotherapy or speech and language therapy, the August study found.

Physicians describe medically complex children as those who are born or become seriously ill soon after birth. They often require feeding tubes and ventilators, and are likely to be non-verbal. These children need care throughout their lives and require multiple specialists.

Research suggests that 30 per cent of the children’s parents avoided taking them to the emergency room in circumstances where they would normally have done so. From March until May, 60 per cent of the surveyed children stopped attending school. Parents were concerned over what their child might be exposed to.

The B.C. Ministry of Children and Family Development typically provides all medical equipment for children with a chronic illness. The ministry also provides co-payments for therapies, extra care to ensure the child’s parent can have a break, and allows support payments for licenced daycares.

Thirty-eight per cent of children’s parents were not able to access ministry supports to offset the impact of COVID-19 restrictions.

“The most surprising detail was from the B.C. ministry – most parents didn’t know about their support networks, or couldn’t access them even though they were advertised as key supports,” said lead researcher Jennifer Baumbusch.

“This had a huge impact on the parents’ physical and mental health.”


@janelle_swift
janelle.swift@castlegarnews.com

Like us on Facebook and follow us on Twitter.

Coronavirus

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Police tape is shown in Toronto Tuesday, May 2, 2017. Statistics Canada says the country's crime rate ticked up again in 2018, for a fourth year in a row, though it was still lower than it was a decade ago. THE CANADIAN PRESS/Graeme Roy
CRIME STOPPERS: ‘Most wanted’ for the week of May 9

Crime Stoppers’ weekly list based on information provided by police investigators

Fraser Health held a COVID-19 vaccine clinic at Gurdwara Dukh Nivaran Sahib in Surrey, which would be in what the BCCDC refers to as the Panorama community, on Friday, May 7, 2021. Roughly 400 people pre-registered to get their vaccine the week before. (Photo: Lauren Collins
Surrey communities recording more COVID-19 cases also seeing lower vaccination rates

Those same communities were highlighted in the SPEAK survey, which highlighted disparities in the city

Twenty-nine staff members at Sunrise Poultry Processors Ltd. in Newton have tested positive for the virus, according to an information bulletin from Fraser Health Saturday (May 8). The health authority issued a 10-day closure order, effective May 7. (Image: Google Maps)
29 staff test positive for COVID-19 at Surrey poultry processing plant

Meantime, outbreak over at Surrey Memorial Hospital

The College of Massage Therapists of B.C. says Van (William) Dinh, a registered massage therapist in Surrey and Langley, has had his licence suspended while an inquiry committee panel investigates allegations of sexual misconduct. (Unsplash photo)
Surrey massage therapist suspended amid sexual misconduct investigation

CMTBC received complaint Van (William) Dinh allegedly exposed ‘sensitive areas of the patient’s body’

Hundreds gathered for a candlelight vigil Friday evening (May 7) to remember 29-year-old corrections officer Bikramdeep Randhawa, who was killed in last weekend’s brazen daylight shooting outside North Delta’s Scottsdale Centre mall. (James Smith photo)
Hundreds gather to remember victim of North Delta shooting

Corrections officer Bikramdeep Randhawa, 29, was killed in what police say was a targeted incident

(The Canadian Press)
Trudeau won’t say whether Canada supports patent waiver for COVID-19 vaccines

‘Canada is at the table to help find a solution’

Edmonton Oilers’ Connor McDavid (97) celebrates his 100th point this season with Leon Draisaitl (29) against the Vancouver Canucks during second period NHL action in Edmonton on Saturday, May 8, 2021.THE CANADIAN PRESS/Jason Franson
Edmonton superstar McDavid hits 100-point mark as Oilers edge Canucks 4-3

NHL scoring leader needs just 53 games to reach century mark

Nuns of Mother Teresa’s Missionaries of Charity, carry some of her relics during a vigil of prayer in preparation for the canonization of Mother Teresa in the St. John in Latheran Basilica at the Vatican, Friday, Sept. 2, 2016. In which city did she do much of her charitable work? (AP Photo/Gregorio Borgia)
QUIZ: How much do you know about these motherhood issues?

In honour of Mother’s Day, take this 10-question quiz

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

A map showing where the most number of cases were recorded from April 23 to 29. This map, revealing a breakdown of infections by neighborhood, was pulled from a data package leaked to the Vancouver Sun last week (and independently verified).
36 Abbotsford schools flagged for COVID-19 exposures in the last 2 weeks, shattering record

Clearbrook Elementary recorded an ‘exposure’ on all 11 school days

Canada’s chief public health officer is reminding Canadians even those who are fully vaccinated are not immune from transmitting the COVID-19. THE CANADIAN PRESS/Adrian Wyld
Canada’s top doctor warns full vaccination does not equal full protection from COVID-19

Post-inoculation, Theresa Tam says the risk of asymptomatic infection and transmission is far lower but not obsolete

The dash cam footage, taken May 7 at 8:18 a.m. belonged to the driver of a southbound vehicle that recently travelled out of the tunnel. (Reddit/Screen grab)
VIDEO: Dash cam captures dramatic rollover crash on Highway 99

Only one person sustained injuries from the collision, says B.C. Ambulance Services

Chevy stranded on a ledge above a rocky canyon at Mimi Falls near Logan Lake, April 28, 2021. (Photo credit: Margot Wikjord)
Police officer and fire chief team up in risky rescue of stranded dog near Logan Lake

Chevy, a rescue dog, needed rescuing again after getting stuck on a ledge above rocky canyon

Most Read