Lily and the lake: How a young B.C. girl with Down syndrome swam to her dream

Ida Jenss and Lily Nay swam across Kootenay Lake near Kaslo on Thursday. Photos: Tyler HarperIda Jenss and Lily Nay swam across Kootenay Lake near Kaslo on Thursday. Photos: Tyler Harper
New experiences are difficult for Lily, who needed some help hopping off the boat into the lake. Photos: Tyler HarperNew experiences are difficult for Lily, who needed some help hopping off the boat into the lake. Photos: Tyler Harper
Ida Jenss leads Lily at the mid-way point of the swim across Kootenay Lake. Photos: Tyler HarperIda Jenss leads Lily at the mid-way point of the swim across Kootenay Lake. Photos: Tyler Harper
Ida played games with Lily to keep her going and coaxed her with the promise of a good lunch. Photos: Tyler HarperIda played games with Lily to keep her going and coaxed her with the promise of a good lunch. Photos: Tyler Harper
A small group of friends cheer the pair on as they approach the end of their swim. Photos: Tyler HarperA small group of friends cheer the pair on as they approach the end of their swim. Photos: Tyler Harper

Lily Nay, a very special girl, woke up in a very foul mood.

Outside Lily’s window, an overcast sky had settled over her home in Kaslo. Light rain sprinkled the ground and wind ruffled leaves in the trees. The summer had, at least for the day, opted to stay in bed. Perhaps Lily would as well.

But instead she got up and had a hearty breakfast. And once she remembered what she had planned, Lily decided she wasn’t so grumpy after all.

For on this glum September morning, Lily Nay was going to swim across the Kootenay Lake.

If any 10 year old could swim the lake, it would be Lily. She swims every day. Because she was born with Down syndrome, Lily experiences hypotonia, or low muscle tone. Being in the water helps her core stay strong and lets her keep up with her friends. It also means Lily can do something her mother can’t.

When Fiona Nay learned she would have a daughter with Down syndrome, she was terrified. She thought her life would change in terrible ways, and cried for months after learning the news.

But there are 45,000 Canadians living with Down syndrome, according to the Canadian Down Syndrome Society. As Fiona soon learned, they are capable of wonderful things like acting, athletics, art and, of course, swimming. The Down Syndrome International Swimming Organization lists Canadian Michael Qing among its world record holders. Special Olympics Canada’s swimming team includes Bobbi-Lynn Cleland, who has been competing for 30 years.

Lily’s first wonderful thing was learning to read at just two years old, well before many of her friends could. Her second was starting private lessons in the water at six or seven years old. Trips to the pool became a daily ritual for Lily.

Fiona can’t swim, not even a little. But when she watches her daughter in the water, she isn’t nervous for Lily’s safety. All she feels is pride.

“She’s just like a little dolphin, a little fish,” said Fiona.

Last year, Lily made a new friend. Ida Jenss moved to Kaslo from Germany to live with the family as an au pair.

Ida is 20 years old and a strong swimmer. So when the weather is good, and sometimes even when it isn’t, Lily and Ida start swimming at noon and don’t stop until it’s time for dinner.

Shortly after she arrived, Ida thought she might try swimming across Kootenay Lake. The lake is eight kilometres at its widest point, but only slightly less than a kilometre and a half across from the tip of Kaslo.

Ida’s idea became Lily’s goal. At first she was scared of the lake, which was open and intimidating compared to her pool. So Ida began taking Lily to the beach, and soon she had to keep Lily from swimming too far out.

Then, on the gloomy September morning when tourists abandoned the lake to fish and osprey, Lily put on her wetsuit and went to the water.

As a fishing boat approached the dock to pick up Fiona, Ida and Lily, she turned to her mother and asked, “We don’t have to turn around?”

“No,” replied Fiona. “No one is going to stop you.”

Lily turned back to face the lake and smiled. Today was at last the day.

This is the route Lily and Ida swam. Photo: Google Maps, Animation: Sandra Leonard.

When the boat arrived at the start point, Ida dove in the water and forced herself to smile for Lily who watched from the bow. The temperature was chilly and the waves made it difficult to tread water.

Lily had never jumped off a boat before. She suddenly wasn’t so sure this was a good idea.

“It’s too cold,” she said.

“No it isn’t,” fibbed Ida. “See? I’m in and I’m fine.”

“Lies, lies lies,” said Lily.

So she counted to three on her hands. One, two, three, and she jumped into Ida’s arms.

“It’s cold!” Lily cried, but she stayed with Ida anyway.

The pair paddled away from the boat and for a time didn’t swim. As she watched from the boat, Fiona wondered if today was indeed the day.

But then they began to play a game. Ida started swimming away while Lily pretended to be a shark, and later they swapped who was the hunter and who was the prey.

As Lily and Ida approached the halfway point, the sun peeked through the clouds and Fiona allowed herself to hope they would finish the swim. But in the water Lily’s attention wavered. She was getting tired and hungry.

Ida continued to coax her on with the promise of food. Lily is a big fan of food, especially pizza. There was pizza waiting for her on the other side, said Ida, and that encouraged Lily to keep swimming.

Meanwhile in Kaslo, word began to spread about the little girl with blonde French braids in the lake. A group of Lily’s friends gathered on the shore, and Lily and Ida were close enough to hear the cheers.

When she was just a couple hundred metres from the shore, Lily spotted Fiona trailing nearby in the boat and forgot about the swim. She decided she wanted her mom.

Fiona motioned for everyone on the shore to be quiet and then hid inside the boat. After a minute Lily forgot about her mom, turned, and swam to the beach. And when she could stand up, she reached for Ida who picked up Lily and carried her the final steps to the beach.

Lily Nay had crossed Kootenay Lake in just over an hour.

In the boat, Fiona marvelled at her daughter’s accomplishment. “I think I’m in shock,” she said. “You know your kid can do something, but can they really do it?”

Lily took off her wetsuit, wrapped herself in a towel and huddled with Ida who rubbed her back. The lake, she said, was just a big pool.

A big pool made small by a very special girl.

@tyler_harper | tyler.harper@nelsonstar.com

Like us on Facebook and follow us on Twitter.

Want to support local journalism during the pandemic? Make a donation here.

Swimming

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Through his lens, Doug Cook captured this picture of the Fraser River, Mount Baker, an eagle, and even the Golden Ears Bridge on a sunny fall afternoon. The photo was taken from the wooden walkway leading down to the Pitt Meadows Regional Airport float plane dock. (Contributed photo)
Friends of Semiahmoo Bay to host virtual World Wetland Day event

Webinar event to feature six speakers, to be held Feb. 2

One of the Choices Lottery grand prize packages includes a home located at 16730 19 Ave., Surrey. (Contributed photo)
Two South Surrey homes featured in Choices Lottery

Tickets on sale now for BC Children’s Hospital lottery

Pindie Dhaliwal, one of the organizers for the Surrey Challo protest for Indian farmers. She says organizers were told by Surrey RCMP that the event was not allowed due to COVID-19. Organizers ended up moving the protest to Strawberry Hill at the last minute. (Photo: Lauren Collins)
Indian farmers rally moves as organizers say Surrey RCMP told them they couldn’t gather

Protest originally planned in Cloverdale, moved to Strawberry Hill

The City of Surrey is currently working through the initial phase for a park that’ll be built at 72 Avenue and 191 Street in Clayton. (Image via City of Surrey)
New park to be built in Clayton Heights

City of Surrey asking for feedback from Clayton residents

Fraser Health has declared a COVID-19 outbreak at a Surrey high-intensity rehabilitation unit, Laurel Place. On Dec. 22, 2020, Fraser Health said four patients and two staff members have tested positive for the virus. (Image: Google Street View)
Fraser Health says COVID-19 outbreak over at Laurel Place in Surrey

Health authority declared outbreak over Jan. 16

A scene from “Canada and the Gulf War: In their own words,” a video by The Memory Project, a program of Historica Canada, is shown in this undated illustration. THE CANADIAN PRESS/HO - Historica Canada
New video marks Canada’s contributions to first Gulf War on 30th anniversary

Veterans Affairs Canada says around 4,500 Canadian military personnel served during the war

A 17-year-old snowmobiler used his backcountry survival sense in preparation to spend the night on the mountain near 100 Mile House Saturday, Jan. 16, 2021 after getting lost. (South Cariboo Search and Rescue Facebook photo)
Teen praised for backcountry survival skills after getting lost in B.C.’s Cariboo mountains

“This young man did everything right after things went wrong.”

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

Conservative Leader Erin O’Toole holds a press conference on Parliament Hill, in Ottawa on December 10, 2020. THE CANADIAN PRESS/Sean Kilpatrick
No place for ‘far right’ in Conservative Party, Erin O’Toole says

O’Toole condemned the Capitol attack as ‘horrifying’ and sought to distance himself and the Tories from Trumpism

A passer by walks in High Park, in Toronto, Thursday, Jan. 14, 2021. This workweek will kick off with what’s fabled to be the most depressing day of the year, during one of the darkest eras in recent history. THE CANADIAN PRESS/Chris Young
‘Blue Monday’ getting you down? Exercise may be the cure, say experts

Many jurisdictions are tightening restrictions to curb soaring COVID-19 case counts

A health-care worker prepares a dose of the Pfizer-BioNTech COVID-19 vaccine at a UHN COVID-19 vaccine clinic in Toronto on Thursday, January 7, 2021. THE CANADIAN PRESS/Nathan Denette
COVID-19: Provinces work on revised plans as Pfizer-BioNTech shipments to slow down

Anita Anand said she understands and shares Canadians’ concerns about the drug company’s decision

Tourists take photographs outside the British Columbia Legislature in Victoria, B.C., on Friday August 26, 2011. A coalition of British Columbia tourism industry groups is urging the provincial government to not pursue plans to ban domestic travel to fight the spread of COVID-19. THE CANADIAN PRESS/Darryl Dyck
B.C. travel ban will harm struggling tourism sector, says industry coalition

B.C. government would have to show evidence a travel ban is necessary

(Phil McLachlan - Capital News)
‘Targeted’ shooting in Coquitlam leaves woman in hospital

The woman suffered non-life threatening injuries in what police believe to be a targeted shooting Saturday morning

sdf
Another Mission student arrested for assault, in 2nd case of in-school violence this week

RCMP notified of local Instagram page with videos (now deleted) showing student assaults, bullying

Most Read