Maureen Kennah-Hafstein is overjoyed at being able to reduce her medication for Parkinson’s Disease after undergoing long-awaited Deep Brain Stimulation surgery. (Martha Wickett/Salmon Arm Observer)

Maureen Kennah-Hafstein is overjoyed at being able to reduce her medication for Parkinson’s Disease after undergoing long-awaited Deep Brain Stimulation surgery. (Martha Wickett/Salmon Arm Observer)

B.C. woman describes state-of-the-art Parkinson’s treatment as ‘miraculous’

After a long wait for Deep Brain Stimulation procedure, excruciating symptoms are disappearing

Despite all she’s been through with Parkinson’s Disease over the past 12 years, joy and gratitude radiate from Maureen Kennah-Hafstein.

On Sept. 17, the Salmon Arm resident and former Sicamous teacher underwent long-awaited Deep Brain Stimulation (DBS) surgery in Vancouver, which involved the placement of two electrodes in her brain. If you feel the top of her head, you can feel two small bumps, which she laughingly calls her antlers.

She has a little square antenna that she can place on her skin next to a pacemaker device that was attached just under the skin of her abdomen during surgery. The antenna has a short cord which connects it to a hand-held stimulator.

When she needs to increase the brain stimulation in order to reduce the medication she has to take, she just presses a button, much like you might increase the volume on your cell phone. What she does is checked by a team of nurses during her regular appointments in Vancouver.

The transition has been full of highs and lows, both physical and emotional. The only side effects at this point are slightly slurred speech and some drooling.

Over the next few weeks, the process of adjusting the stimulator and her medication continues, with the goal of leaving her on as little medication as possible. Already her previous allotment of 36 pills per day has been reduced to six.

The night before the interview she was unable to sleep because of restless leg syndrome. She used the stimulator to get rid of the tremors.

READ MORE: Shuswap woman with Parkinson’s receives long-awaited date for surgery

Although Kennah-Hafstein describes the actual surgery as “the hardest thing I’ve had to endure in my whole life,” she finds the whole DBS treatment nothing short of miraculous.

“Sitting across from you, I’m not going into these crazy body movements… I have a calm body inside which I haven’t really had for 12 years. People don’t realize what you see on the outside (all the movement that comes with the Parkinson’s medication) is amplified on the inside.”

Her overriding focus remains gratitude and joy.

“You realize you could go down the dark path or the light path. I chose the light path because there’s so much more you can get from that. Joy and gratitude is a lot more enjoyable and satisfying than doom and gloom.”

She repeats her favourite expression, which she admits to both hating and loving. It sounds really bad, she says, but is actually a sign post.

“It’s never so bad it couldn’t be worse” is the expression. She thinks with any trial in life, people have to go down the dark side to appreciate there is another way to look at it.

READ MORE: Salmon Arm woman hopeful after undergoing surgery for Parkinson’s

“I chose to look at it as a lesson I have something to gain from. So now I’m overflowing with gratitude – I can’t describe to you how much gratitude.”

She says the best gift you can give to anyone is that positive energy, the light side.

“I can be a good example to my children and everybody. I’m not the only person who has endured this suffering,” she says.

“If everything was rosy all the way along, you wouldn’t learn anything. You wouldn’t learn gratitude to the depth I’ve learned it. I feel that I’ve been given the gift of understanding that.”

Shuswap MLA Greg Kyllo, whose children she taught in school, recognized the contributions of Kennah-Hafstein to improving treatment for people with Parkinson’s in the Legislature recently. She says the speech was the icing on her cake.

Once the adjustments to the stimulation and medication are complete, Kennah-Hafstein expects to have 10 years symptom-free, “but I am pushing for 20. Every bit of joy and gratitude I can get out of myself will help get me there.”


@SalmonArm
marthawickett@saobserver.net

Like us on Facebook and follow us on Twitter

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

The City of Surrey is currently working through the initial phase for a park that’ll be built at 72 Avenue and 191 Street in Clayton. (Image via City of Surrey)
New park to be built in Clayton Heights

City of Surrey asking for feedback from Clayton residents

Surrey Council Chambers. (File photo)
Surrey city councillors complain not enough public input in committees

City has gone ‘exactly the opposite direction,’ Councillor Brenda Locke charges

A Transit Police officer and another driver were injured on Nov. 4 in a traffic crash while the officer was responding to another officers call for help catching a man who escaped custody. (Photo: Shane MacKichan)
Police watchdog investigating Surrey crash that injured transit cop, another driver

Crash happened 11 p.m. Nov. 4, at 128th Street and 93rd Avenue in Cedar Hills

Members of the community participate in the 7th annual Coldest Night of the Year event Feb. 22, 2020. This year’s event will have a virtual aspect to it because of COVID, says organizer Courtenay van den Boogaard. (Photo Submitted: Amanda Grewall)
Coldest Night of the Year fundraiser to support Cloverdale Community Kitchen

Annual events raises funds to help homeless community

Music therapist Felicia Wall in the music room at Phoenix Society in Surrey. (submitted photo)
Eclectic album showcases songs recorded by Surrey residents in recovery

Project at Phoenix Society took about six months to complete, with help of music therapist

Health Minister Adrian Dix and provincial health officer Dr. Bonnie Henry head for the press theatre at the B.C. legislature for an update on COVID-19, Jan. 7, 2021. (B.C. government)
B.C.’s COVID-19 spread steady with 509 new cases Friday

Hospitalized and critical care cases decline, nine deaths

Seasonal influenza vaccine is administered starting each fall in B.C. and around the world. (Langley Advance Times)
After 30,000 tests, influenza virually nowhere to be found in B.C.

COVID-19 precautions have eliminated seasonal infection

Prime Minister Justin Trudeau listens to a question during a news conference outside Rideau cottage in Ottawa, Friday, January 8, 2021. THE CANADIAN PRESS/Adrian Wyld
Trudeau says Canada’s COVID vaccine plan on track despite Pfizer cutting back deliveries

Canadian officials say country will still likely receive four million doses by the end of March

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

JaHyung Lee, “Canada’s oldest senior” at 110 years old, received his first dose of the COVID-19 vaccine on Thursday, Jan. 14, 2021. He lives at Amenida Seniors Community in Newton. (Submitted photo: Amenida Seniors Community)
Jobs Minister Ravi Kahlon shared a handwritten note his son received on Jan. 13, 2021. (Ravi Kahlon/Twitter)
Proud dad moment: B.C. minister’s son, 10, receives handwritten note for act of kindness

North Delta MLA took to Twitter to share a letter his son received from a new kid at school

Lilly and Poppy, two cats owned by Kalmar Cat Hotel ownder Donna Goodenough, both have cerebellAr hypoplasia, a genetic neurological condition that affects their ability to control their muscles and bones. Photo by Alistair Taylor – Campbell River Mirror
VIDEO: Wobbly Cats a riot of flailing legs and paws but bundles of love and joy to their owner

Woman urges others to not fear adopting cats with disabilities

Chief public health officer Dr. Theresa Tam provides an update on the COVID-19 pandemic in Ottawa on Friday, Jan. 8, 2021. THE CANADIAN PRESS/Sean Kilpatrick
Canada’s top doctor says to avoid non-essential travel as B.C. explores legal options

Premier John Horgan says he is seeking legal advice on whether it can limit interprovincial travel

Martin Luther King Jr. addresses the crowd during the march on Washington, D.C., in August of 1963. Courtesy photo
Government reinforces importance of anti-racism act on Black Shirt Day

B.C. Ministers say education “a powerful tool” in the fight for equity and equality

Most Read